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SBS Studies

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Useful Organizations

Crohn's and Colitis Foundation of America
386 Park Avenue South, 17th Floor
New York, NY 10016-8804
Phone: 212-685-3440, 800-932-2423
e-mail: info@ccfa.org
Website: http://www.ccfa.org
Gastro-Intestinal Research Foundation
70 East Lake Street, Suite 1015
Chicago, IL 60601-5907
Phone: 312-332-1350
e-mail: girf@girf.org
Website: http://www.girf.org/
International Foundation for Functional Gastrointestinal Disorders
PO Box 170864
Milwaukee, WI 53217-8076
Phone: 414-964-1799
e-mail: iffgd@iffgd.org
Website: http://www.iffgd.org
 
Intestinal Disease Foundation
Landmarks Building, Suite 525
One Station Square
Pittsburgh, PA 15219-1138
Phone: 412-261-5888, 877-587-9606 (toll-free)
e-mail: intdis@stargate.net
Website: http://www.intestinalfoundation.org
 
National Digestive Diseases Information
Clearing House
(a service of the National Institute of Diabetes
and Digestive and Kidney Diseases)
2 Information Way
Bethesda, MD 20892-3570
e-mail: nddic@info.niddk.nih.gov
Website: http://www.niddk.nih.gov
 
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: 203-744-0100, 800-999-6673
(voicemail only)
e-mail: orphan@rarediseases.org
Website: http://www.rarediseases.org
 
Nutritional Restart Center
50 West Main Street
Hopkinton, MA 01748
Phone: 508-435-8200, 800-867-6761
e-mail: inquire@nrcenter.com
Website: http://www.nrcenter.com
 
The Oley Foundation (for patients on TPN or EN)
214 Hun Memorial, A-28
Albany Medical Center
Albany, NY 12208-3478
Phone: 800-776-OLEY (in U.S.), 518-262-5528 (outside U.S.)
e-mail: bishopj@mail.amc.edu
Website: http://www.c4isr.com/oley
 
United Ostomy Association
19772 MacArthur Boulevard, Suite 200
Irvine, CA 92612-2405
Phone: 949-660-8624, 800-826-0826
e-mail: info@uoa.org
Website: http://www.uoa.org
 

This information is provided as a general educational service
and is not intended to recommend any particular treatment plan
or to replace the advice of physicians. It is important that patients
seek and rely on the advice of a healthcare professional
about their individual medical conditions.

  
  
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